Showing posts with label feeling. Show all posts
Showing posts with label feeling. Show all posts

20 Jun 2010

Just back from visiting a new baby boy in Muenster, looks like a little cute yellow old man, an incredibily well behaved old man though. I find it hard to believe my big girls were once even smaller than him, he seemed so tiny and fragile. The girls were fascinated by him and kept wanting to stroke his head and hands (thankfully this is third healthy child and the mom is very relaxed about the whole thing) although we drew the line at them wanting to pick him up!

That being said for the first time in a long time I wasn't filled with envy for the new mom. I'm actually enjoying the fact that I won't be changing nappies for the next three years or waking up multiple times during the night to feed a baby (just to soothe a restless kid) and that I'm going back to work in 2 months so will have more adult conversations/discussions again!

Second day of kindergarten tomorrow!!

1 Jan 2009

Happy New Year

I hope you are all feeling better than poor Z today. Silly thing sat up with his best friend drinking until 5:30am this morning. Mean wife that I am, I dragged him out of bed to give C and E their bottles at 8am, although I did let him off giving them their cereal. Poor man was green by the end of the bottles and I don't think he would have survived the morning solids, he barely managed the midday solids. Let us just say he did not enjoy the 2 hour drive back to our home from Muenster.

As you may have guessed some of us had a very festive New Year. The girls faded at 6pm as usual and I was also in bed well before midnight (Ciara has had a couple of bad nights in a row which leaves me wrecked), however Z and our friends more than made up for us faders.

We've had a great start to the New Year with Enya standing up straight, without any support or pulling up on anything, twice today. She can only hold her balance for a few seconds but she is trying really hard. Ciara has set a new record of 22 steps in a row without falling down as well (Z was counting!).

Ciara also mastered the stairs while we were at our friends, she even did more than half the stairs unsupervised while I was bringing Enya back to bed after breakfast. The stairs had no gate on them and I was alone. I thought she was distracted in the kitchen but when I came back to fetch her she met me halfway up the stairs - that got my heart rate going. After that every time she saw the stairs she headed straight for them. Thank goodness we don't have any stairs at home!!

11 Nov 2008

Perspectives

The news right now is full of a trial happening right now in my city. A woman is being tried for the murder of 3 of her daughters. She managed to hide the pregnancies and after giving birth, killed them and hid their bodies in the freezer. She was only found out when her 18 year old son went looking for a frozen pizza in the freezer and instead found the frozen remains. The first little girl was killed in 1986 and the last in 2004. We've had a spate of such sick things in the news in the last few years but this time it happened in our neck of the woods! The news reports state by the last pregnancy this woman had alcohol problems but she does have 2-3 other kids that did live through the perinatal period. I have to wonder what would drive a woman and mother to do such a dreadful thing, not once but 3 times!!

Another bit of news is my ex-sister in law is pregnant again. She had a baby a couple of months before C and E arrived with her new fellow and is now apparently expecting their 2nd child together. She had 3 kids with my brother in law and is generally described as a dreadful mother. The kids used to do all the housework (cooking, cleaning, ironing, washing) while she sat in front of the TV vegetating. Her oldest child (20 years old) refuses to have anything to do with her and while the younger two do live with her they are not happy. The only reason the youngest is still living with her is she told him if he goes back to his dad not to bother coming back to visit!

I think about how hard it was for me to get pregnant and how I tried to be so careful during my pregnancy and despite this it was cut short and yet some other people who are "fertile Myrtles" with trouble free pregnancies don't appreciate their good fortune. I suppose that might be the difference, for them it isn't good fortune, it is their normality. My normality means pregnancy is an unattainable goal without doctors, drugs and loads of visits to the fertility clinic, followed 6 months later by a 4 month hospital stay for the babies. For them it is just the result of a good night in bed at the right (wrong) time, followed 9 months later by a healthy baby. I guess for those who have struggled in someway to get/stay pregnant, pregnancy gains an extra lustre and the baby at the end is that little bit more precious. Please note I'm not saying that we(infertile Myrtles) are better mothers, just that we know this baby probably wouldn't be here without lots of help from modern science and the chances of another child are poor without the same help again.

Any how I think I'm going to go hug my precious little bundles now as they are waking up from their morning nap.

30 Sept 2008

300mls!!

I think we may be on the verge of another growing spell x2. Ciara drank 300ml (10oz!!) a couple of days ago for her afternoon bottle and a few hours later another 170ml. I've bumped her afternoon feeds consistently up to 240ml (8oz). Enya on the other hand is verging on a bottle strike. Once again we are battling to get her to drink her whole bottle but at least she is usually drinking half of it without complaining (90ml-3oz). So what with the overeating/under eating on one side and the sleep strike on the other side, I'm thinking we may have a growth spurt on the horizon. It can't be teeth as I can't feel any bumps on the gum lines.

The down side to Ciara drinking so much in the afternoons is that she keeps soaking through her nappy overnight. In the mornings her babygro, vest and sleeping bag were all soaking. When I weighed her nappy (yes I am that weird, I wanted to see how much she could produce overnight;-)) it weighed well over 340g, that meant her nappy weighed almost half as much as she did when she was born!! That made me feel very odd. A little aside here, our girls are some of the thankfully few people in the world who will someday weigh around 100 times their birth weight- that makes me feel odder! Anyway the solution to our soaking problem has been that we have changed our evening routine around. We used to put the girls straight to bed after dinner i.e. nappy change and pyjamas used to happen before dinner as Ciara was so tired during dinner that she could barely keep her eyes open to eat. Now that she is needing (a lot!!) less sleep, we do everything after dinner and so far this has remedied the leakage.

The plus side to the new evening routine is the girls get to stay at the table while we eat, our plan is still to have them eating christmas dinner with us this year! They seem to really enjoy this time as they love screeching at each other across the table and very often one or the other will start laughing which sets the other one off. I love the feeling of being a family together at the dinner table, now we just got to work on getting the girls self feeding so we can all eat together.

19 Sept 2008

Do we, don't we...

..try for a third child?

Z and I have been having some long discussions about this lately. I adore my girls and now that they are no longer babies and are demanding in a different way that is somehow also loads of fun, I would love another baby. I want a normal pregnancy resulting in a normal birth and hopefully a healthy full term baby. Z on the other hand is still in shock after all we've been through this past year and is hesitating/resisting.

He is terrified that we would have another preemie not least because the chance that we'd have multiples again remains. In order to stimulate my ovaries enough to ovulate I require injectible hormones and its impossible to control the dose so that only one egg is produced. Both times we got a response to the drugs I had 3 "mature" follicles (>18mm) and multiple smaller ones. If I'd had more than 3 big'uns they would have had to cancel the cycle, as in Germany they are not allowed to proceed with the IUI if there are more than 3 mature follicles (likewise they are not allowed to put back more than 3 embryos with IVF, to reduce the chances of high order multiples). The cycle which resulted in C and E started off as triplets, but one of the embryos didn't develop past a sac. So when they speak about a 2% chance of triplets I get a bit antsy! I'm not comfortable with the idea of embryo reductions. Our other option would be IVF and single embryo transfer but that is a lot more invasive, expensive, has a very uncertain outcome and I'm not sure if our medical insurance would allow it, given that we got pregnant with an IUI last time.

I was also on modified bedrest from week 7 of my pregnancy and if the next pregnancy was as difficult I would not be able to go onto bedrest with 2 toddlers at home, we have no family that lives close and could give me a hand. The doctors at the hospital have already said if I get pregnant again I would get a cerclage at week 16 especially if I had another twin pregnancy (of course if they'd listened to my obstetrician I would have got that with C and E as well). So that is another con to consider.

We are also not getting any younger which adds time pressure to the whole decision. Z asks if would I cope with 3 babies under 3, but at the same time he doesn't want to be looking after a newborn baby when he's over 40 (he doesn't want to be the dad that's mistaken always for the grandpa!). So ideally it needs to happen in the next 2 years, if we're going to try again.

I think I dealt with the events of this last year a bit differently to Z. I found support on the internet with a preemie moms group and many of the moms there have had another child since their preemie. Most of their pregnancys were very strictly monitored but have ended happily in full term or near full term births. This gives me courage that we could also be lucky next time. Isn't it strange, for most people a normal pregnancy is taken for granted or even in some cases an unwanted burden, while for others it is the most precious gift one could ever receive.

Decisions decisions...we need to think more about this one.

10 Aug 2008

A year ago today.....

I was 24 weeks pregnant and lying in hospital, hoping beyond all hope that we would get at least another 4 weeks before the girls came.

We'd had a ultrasound 3 days before and everything had looked fine, although the girls were small the doctors were pleased with the placental function and confirmed we were having 2 girls. They didn't check my cervix as they didn't want to risk introducing an infection, and I wonder now if they had if maybe they could have done something. When I was admitted to hospital that Thursday night, I was 2cm dilated and they ascribed the bleeding due to the dilation.

Right now I'm gearing up for the girls birthday and it will be a happy day but I'm finding the lead up difficult. All the what ifs and what could have beens...

We got the reports from the last neurodevelopmental follow up and for once they were IMO relatively accurate. I was criticized for putting too much pressure on myself to ensure Enya drank enough, but I knew that was coming. Ciara now is described as only having mild tone and coordination problems although Enya is astonishingly still classed as at risk of cerebral palsy! I think if we had the appointment tomorrow we would get a completely different description as Enya is now doing everything Ciara was at that time and more!

I'm off to go and organise my new bookcases now and enjoy the Olympic Games so I wish you all a restful Sunday

22 Jul 2008

Not doing well

Me this time, not the girls. We're coming up for the anniversary of when I was admitted to hospital and with one thing and another I'm not coping very well. Thankfully Z has this week off.

Enya has lost weight this week but when she only drinks one bottle the entire day what can you expect. She is still eating her solids at least, even if that is not as much as usual.

6 Jul 2008

Delays

I know intellectually that it is expected for such premature babies as ours to be developmentally delayed but it was really underlined this weekend.

We had the summer family day with Z's volleyball friends yesterday, one of the ladies had her daughter, lets call her M, 6 weeks after our girls due date (her daughter was also a couple of weeks early). M is sitting by herself, crawling and even attempting to stand. Ciara and Enya are rolling all over and Ciara is going onto her hands and knees but no sign of sitting or forward movement.

I know they will do it in their own time and M is doing this all very early but it just brought it home once again that the effects of their premature birth will accompany them long term.

I'm also fed up with Vojta therapy, more and more I have the feeling that it is pointless torture, that I'm not doing it properly and I'm sick and tired of always being the one that has to do it (Z refuses to do it at all anymore). I want to drop it but our paediatrician has already said if we stop Vojta, we will not get another form of physio prescribed! I would prefer to do Bobath therapy which is a gentler technique. As much as I hate Vojta, I know the girls need some form of physio therefore I have no choice but to continue.

Sorry just feeling a bit down today!

22 Apr 2008

Spring time schedule

We've spent another day hiding inside as the weather has been absolutely s#%t. I can't believe that we are almost in May and I still have the heating on during the day.

On that note we haven't been outside much with the pram as the girls are on a tight schedule:

7am Wake up
7:15am bottle and breakfast
8:30am morning nap
10am wake up, physio
11am bottle and lunch
12:30pm midday nap
2pm wake up, physio
3pm bottle and play
4:30pm afternoon nap
6pm wake up, physio
7pm bottle and dinner
8pm bed

Does anyone else think these poor kids do nothing but eat, sleep and physio? I can't cut the naps as they really need them. Enya fell asleep over lunch again today- you know it's bad when you have to wake her up for every spoonful! Physio is only getting done 3 times a day (supposed to be 4 times a day) and takes about 20mins per child, and feeding....well they need to eat, don't they.

I worry that they are not getting anytime to play and be babies. Their awake time is filled with physio which is very regimented and they don't get a lot of time to play/practice moving their bodies and gain new skills (eg like rolling- nowhere near happening!!).

14 Apr 2008

Mommy feeling

I don't know if this is common with moms whose babies land up spending a lot of time in hospital just after they are born or if it is just me, but the "mommy" feeling hasn't really hit yet. Intellectually I know I am a mom but I still feel that the girls aren't mine. Understand I am not saying I don't love the girls because I do, I just don't feel that they are all mine.

It maybe because we didn't get to bond immediately after they were born. I had a general anaesthetic for the CS as the spinal didn't work and only got to see them the next day. Even if I had been awake they had to really fight to save Enya so I wouldn't have seen her in the theatre, Ciara did cry when she was born but was also then intubated (and then extubated by that evening when Z went in to see the girls).

We were really lucky as by the 3rd day after the girls were born we were allowed to start kangaroo care with Ciara (Enya had an IVH and so we were only allowed to start kangarooing the week after with her). When I read other micropreemie blogs I realised we were very lucky in that our unit was very pro kangaroo care and we could almost always kangaroo. Even when they reintubated Enya and they had to bag her during the transfer to the parental body, they encouraged us to kangaroo with her. They said the benefits from the time spent on us far outweighed the stress of the transfer, as she was always more stable when we cuddled her.

However we were not involved in the actual care of the girls until they were nearly 2 months old. We missed their first baths, their first attempts at bottle feeding, we didn't get to put their first clothes on, we didn't get to hold them first, we didn't even get to accompany them for their first car journey, we even had to ask before we touched them. Although I spent most of the day in the hospital with them, the nurses spent more time with them and knew more about them than I did. When they finally were allowed into the warm beds I still had to ask before picking them up, changing their nappys or bathing/feeding them. I felt that they belonged to the nurses and I was just a very frequent visitor. This feeling was not helped by the saga with the breast milk (They made me feel my milk was poison for Ciara). I felt there was nothing I could offer the girls because anyone could cuddle/bath/feed them, the nurses could even do the feeding/bathing much better than I could.

Now even though Ciara has been home longer than she was in hospital (as of the weekend:-)), the feeling still persists that they are not all mine although it is subsiding veeerrry slowly. However I still don't have the classical mommy feeling and feel I should be asking permission before I change anything in their care. I guess it will take longer to make up the time we lost and to bond with them.

4 Mar 2008

Stress

I've had a really stressful day and am so frustrated as nothing has gone as I wanted.
I deliberately fed the girls a bit earlier last night so that we would get a 4am feed and then a 8 am feed in but I have done my "sleep in" training a bit too well. They woke at about 6am which meant that they were due for their next feed while we were at physio.
The physio appointment was with our old physio (RATS!!) and had to be moved forward to 9:30 as she takes 2 hours to treat the girls (most of this is taken up with inane chatter that has nothing to do with my girls or their physio) and we had a doctors appointment in another part of town at 12. What was frustrating here is she arrived nearly half an hour late so we had time to treat Ciara and 15 minutes left for Enya. She also said (repeatedly) she would never have done things this way, as it was too much stress for the girls to have physio and a doctors appointment on the same day. Yes it was ,but if she hadn't wasted so much time with irrelevent babble, we could have looked at my technique so I could confidently treat the girls next weekend. Instead she said everything we were shown last week I'm doing wrong, however she would wait until next week sometime to correct it. YUP- once again no definite appointment for next week. I'm to blame though as I chickened out of telling her we want to change physios!!
I managed to get to our doctors appointment on time (I hate being late as I know how irritating it is to wait for your next patient), and gave Enya her bottle there, 2 hours late (she only drank 80mls of it-we aim for min of 100ml). That appointment went well with the doc (ex chief of the developmental center with loads of preemie experience) saing he thought it looks like we could come away from this preemie business without too many ill effects (YAYY!!)
When I finally got home neither girl was particularly interested in their next bottle and so it has remained for the rest of the day. Enya has not even reached 400mls yet and we only have one more feed to go (aim is 600mls). In part it could be due to the vaccinations they got today but also due to the appointments coinciding with meals everything has been thrown off kilter. I could throw things (promise I will not throw babies no matter how tempting;-)).
Okay rant over and I'm feeling better for it. I have the day off tomorrow from appointments and no home physio treatments for 3 days-HOLIDAY !! (sort of)